My journey through blindness from Retinitis Pigmentosa and physical handicaps.
Hello and welcome to my blog. I am the Tenacious Blind Girl (aka Shell) and this is my blog about my journey from living a fully sighted existence to learning I have Retinitis Pigmentosa, becoming physically / handicapable and learning to create, live and embrace my “new normal”.
te·na·cious | \ tə-ˈnā-shəs 1a : not easily pulled apart : cohesive a tenacious metal
b: tending to adhere or cling especially to another substance tenacious burs
2a: persistent in maintaining, adhering to, or seeking something valued or desired a tenacious advocate of civil rights tenacious negotiators b: retentive a tenacious memory (https://www.merriam-webster.com/dictionary)
As you can imagine, losing my eyesight and learning I would never return to my previous level of physical function was and will always be an adjustment. I will not hold anything back as I want this blog to show the whole truth: the good, the bad and the ugly. My goal is to keep it real and as we all know, reality is not always flowers and roses, but it is what we do with our reality that counts, in my opinion. And that is all this is: MY opinion, experiences and MY truth. Your results may vary as they say. So, I am glad you decided to join me for this ride!
Where to get support for low vision:
If you are interested in providing and receiving support from folks who know what it is like to live in this sighted world with low vision, please visit Low Vision Support Group (https://LowVisionSupportGroup.com). Low Vision Support Group is an online community for anyone dealing with Low Vision from any sight-stealing condition including but not limited to Retinitis Pigmentosa, Ushers Syndrome, Leber hereditary optic neuropathy (LHON), Macular Degeneration, Cataracts, Glaucoma, Inherited retinal diseases (IRD), Choroideremia (CHM), Leber congenital amaurosis (LCA), Cone-Rod Dystrophies (CRD), Juvenile Magular Degneration (JMD), Diabetic Neuropathy, etc. This list is far from complete, but you get the idea.