On our way to UCLA again. Jim is taking me and Shawn. I’m doing another visual field and finishing the ERG today and Shawn’s surgeon wants to do a post-op check.
I don’t know how I’m going to hold it together for any of this. I feel nearly catatonic at this point.
I woke from my catatonic state a little so I wouldn’t be such a downer for Jim and McGee. They are both trying so hard to stay positive. McGee, on top of her own surgery recovery and Jim trying to balance the increased demands of his promotion with taking care of me and keeping this house running.
I had my umpteenth visual field test and as usual, feel like I didn’t do so hot but at least it is not as grueling as the ERG. McGee’s doctor scheduled her to return 12/20 and once again, I won’t be there for my daughter as I will be in the hospital after my left shoulder replacement.
Day 2 of the ERG was not as grueling; there was no light adaptation required so that helped. Sara, the tech, is awesome and makes it much less scary. I was able to listen to my audiobook so that helped tremendously to make the time go by faster. We drove home in the LA traffic and I dosed the whole way. We picked up an order from Islands but I was too tired to care about eating and went straight to bed.
I have a follow up on 12/17 to find out if I have RP. Two days after that, I will have my left shoulder replacement.